Ruth R. Faden, PhD, MPH, is the founder of the Johns Hopkins Berman Institute of Bioethics. She was the Berman Institute’s Director from 1995 until 2016, and the inaugural Andreas C. Dracopoulos Director (2014-2016). Dr. Faden was, and is currently, the inaugural Philip Franklin Wagley Professor of Biomedical Ethics. In the twenty years in which Dr. Faden led the Institute, she transformed what was an informal interest group of faculty across Johns Hopkins into a bioethics programs with over 35 faculty, 30 staff and over 100 alumni. Under her direction, the Berman Institute became a university-wide unit of Johns Hopkins with its own building, reporting to the Provost. Dr. Faden also secured a significant endowment for the Berman Institute, including six endowed professorships and an endowed directorship.
Dr. Faden is a member of the Institute of Medicine and a Fellow of the Hastings Center and the American Psychological Association. She has served on numerous national advisory committees and commissions, including President Clinton’s Advisory Committee on Human Radiation Experiments, which she chaired. Dr. Faden co-launched the Global Food Ethics and Policy Program, sponsor of the 7 by 5 Agenda for Ethics and Global Food Security. She is also a co-founder of the Hinxton Group, a global community committed to advancing ethical and policy challenges in stem cell science, and the Second Wave initiative, an effort to ensure that the health interests of pregnant women are fairly represented in biomedical research and drug and device policies.
In 2011, Dr. Faden was the recipient of Lifetime Achievement Awards from the American Society for Bioethics and Humanities (ASBH) and Public Responsibility in Medicine and Research (PRIMR).
Dr. Faden is the author and editor of numerous books and many articles on biomedical ethics and public policy, including most significantly Social Justice: The Moral Foundations of Public Health and Health Policy (with Madison Powers) and A History and Theory of Informed Consent (with Tom L. Beauchamp). With Madison Powers, Dr. Faden’s current book project is tentatively titled: Structural Injustice: Deprivation, Disadvantage and Domination.
Dr. Faden’s current research focuses on global justice theory and on national and global challenges in food and agriculture, learning health care systems, health systems design and priority setting, and access to the benefits of global investments in biomedical research. Dr. Faden also works on ethical challenges in biomedical science, with a particular focus on women’s health.
List of Publications
- Faden, Ruth R.; Beauchamp, Tom L. (27 February 1986). A History and Theory of Informed Consent. Oxford University Press, USA. ISBN 978-0195036862.
- Faden, Ruth R.; Kass, Nancy E., eds. (13 June 1996). HIV, AIDS and Childbearing: Public Policy, Private Lives. Oxford University Press, USA. ISBN 978-0195099584.
- Faden, Ruth; Geller, Gail; Powers, Madison, eds. (10 October 1991). AIDS, Women and the Next Generation: Towards a Morally Acceptable Public Policy for HIV Testing of Pregnant Women and Newborns. Oxford University Press, USA. ISBN 978-0195065725.
- Faden, Ruth; Powers, Madison (2006). Social Justice: The Moral Foundations of Public Health and Health Policy. Oxford University Press.
- Stakeholders' Views of Alternatives to Prospective Informed Consent for Minimal-Risk Pragmatic Comparative Effectiveness Trials. Whicher D, Kass N, Faden R. J Law Med Ethics. 2015 Summer;43(2):397-409. doi: 10.1111/jlme.12256.
- Respect and dignity: a conceptual model for patients in the intensive care unit. Henry LM, Rushton C, Beach MC, Faden R. Narrat Inq Bioeth. 2015;5(1A):5A-14A. doi: 10.1353/nib.2015.0007.
- The views of quality improvement professionals and comparative effectiveness researchers on ethics, IRBs, and oversight. Whicher D, Kass N, Saghai Y, Faden R, Tunis S, Pronovost P. J Empir Res Hum Res Ethics. 2015 Apr;10(2):132-44. doi: 10.1177/1556264615571558. Epub 2015 Feb 23.
- The value of unhealthy eating and the ethics of healthy eating policies. Barnhill A, King KF, Kass N, Faden R. Kennedy Inst Ethics J. 2014 Sep;24(3):187-217.
- Informed consent for comparative effectiveness trials. Faden RR, Beauchamp TL, Kass NE. N Engl J Med. 2014 May 15;370(20):1959-60. doi: 10.1056/NEJMc1403310. No abstract available.
- The community speaks: understanding ethical values in allocation of scarce lifesaving resources during disasters. Daugherty Biddison EL, Gwon H, Schoch-Spana M, Cavalier R, White DB, Dawson T, Terry PB, London AJ, Regenberg A, Faden R, Toner ES. Ann Am Thorac Soc. 2014 Jun;11(5):777-83. doi: 10.1513/AnnalsATS.201310-379OC.
- Informed consent, comparative effectiveness, and learning health care. Faden RR, Beauchamp TL, Kass NE. N Engl J Med. 2014 Feb 20;370(8):766-8. doi: 10.1056/NEJMhle1313674. No abstract available.
- Chemotherapy drug shortages in pediatric oncology: a consensus statement. Decamp M, Joffe S, Fernandez CV, Faden RR, Unguru Y; Working Group on Chemotherapy Drug Shortages in Pediatric Oncology. Pediatrics. 2014 Mar;133(3):e716-24. doi: 10.1542/peds.2013-2946. Epub 2014 Feb 2.
- Mothers Matter: Ethics and Research during Pregnancy. Lyerly AD, Faden RR. Virtual Mentor. 2013 Sep 1;15(9):775-8. doi: 10.1001/virtualmentor.2013.15.9.pfor1-1309. No abstract available.
- Ethics and informed consent for comparative effectiveness research with prospective electronic clinical data. Faden R, Kass N, Whicher D, Stewart W, Tunis S. Med Care. 2013 Aug;51(8 Suppl 3):S53-7. doi: 10.1097/MLR.0b013e31829b1e4b.
- The OHRP and SUPPORT. Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, Diekema D, Faden RR, Feudtner C, Fins JJ, Fost NC, Frader J, Hester DM, Janvier A, Joffe S, Kahn J, Kass NE, Kodish E, Lantos JD, McCullough L, McKinney R Jr, Meadow W, O'Rourke PP, Powderly KE, Pursley DM, Ross LF, Sayeed S, Sharp RR, Sugarman J, Tarnow-Mordi WO, Taylor H, Tomlinson T, Truog RD, Unguru YT, Weise KL, Woodrum D, Youngner S. N Engl J Med. 2013 Jun 20;368(25):e36. doi: 10.1056/NEJMc1307008. Epub 2013 Jun 5. No abstract available.
- The research-treatment distinction: a problematic approach for determining which activities should have ethical oversight. Kass NE, Faden RR, Goodman SN, Pronovost P, Tunis S, Beauchamp TL. Hastings Cent Rep. 2013 Jan-Feb;Spec No:S4-S15. doi: 10.1002/hast.133. No abstract available.
- An ethics framework for a learning health care system: a departure from traditional research ethics and clinical ethics. Faden RR, Kass NE, Goodman SN, Pronovost P, Tunis S, Beauchamp TL. Hastings Cent Rep. 2013 Jan-Feb;Spec No:S16-27. doi: 10.1002/hast.134. No abstract available.
- Long-term acute care hospitals: a clinical, economic, and ethical dilemma. de Lissovoy G, Pronovost PJ, Faden R. Med Care. 2013 Jan;51(1):1-3. doi: 10.1097/MLR.0b013e31827a8cb7. No abstract available.
- Kristin Shrader-Frechette
- Inge Schmitz-Feuerhake
- John Goffman
- Non-Nuclear Futures: The Case for an Ethical Energy Strategy
- Johns Hopkins Berman Institute of Bioethics
- Ruth Faden's page at Johns Hopkins Berman Institute of Bioethics
- "What Works and What Doesn't: Jonathan Moreno and Ruth Faden Discuss Comparative Effectiveness Research" (Podcast). Science Progress. 28 May 2009.