List of hemophilia organizations
This is a list of hemophilia organizations, it includes the numerous organizations around the world which are formed for the support of people with hemophilia, including advocacy and education groups.[1] Hemophilia (or Haemophilia) is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation, which is used to stop bleeding when a blood vessel is broken.
National and international advocacy and support organizations
The World Federation of Hemophilia is the largest hemophilia organization in the world, with member organizations in 113 countries and official recognition from the World Health Organization.
International
North American
Central & South American
European
- * Association of Haemophiliacs and Thalassaemics of Ravenna
- * Association of Haemophiliacs of Veneto
- * Association of Haemophiliacs of Toscana
- * Association of Haemophiliacs of Lazio
- * Association of Haemophiliacs of Friuli-Venezia Giulia
- * Association of Haemophiliacs of Bologna
- * Association of Haemophiliacs of Trento
- * Association of Haemophiliacs of Vicenza
- * Association of Haemophiliacs of Milano
- * Association of Haemophiliacs of Brescia
- * Association of Haemophiliacs of Calabria
- * Association of Haemophiliacs of Bari
- * Association of Haemophiliacs of Campania
- * Association of Haemophiliacs of Piemonte
- * Association of Italian Haemophilia Centres
- UK Haemophilia Society (charity)
- Irish Haemophilia Society
- Haemophilia Scotland
- European Haemophilia Consortium (EHC)
- Romanian Hemophilia Association
- Ukrainian Federation of Hemophilia
- Swedish Hemophilia Society
- Danish Hemophilia Society
- Association of French Hemophiliacs
- German Hemophilia Society (DHG)
- Swiss Hemophilia Society
- Russian Hemophilia Society
- Ukrainian Hemophilia Society
- Federación Española de Hemofilia: Spanish Hemophilia Society
- Austrian Haemophilia Society
- Turkish Haemophilia Society
- Turkish Aegean Haempohilia Society
- Association of Haemophiliacs of Israel (Aleh)
- Haemo Groups : Connecting People With haemophilia And Other Bleeding Disorders
African
Asian
- Pakistan Hemophilia Patients Welfare Society® - PHPWS
- Hemophilia Federation (India)
- Hemophilia Home of China
- Hemophilia Society of Singapore
Pacific
- Haemophilia Foundation Australia (HFA)
- Haemophilia Foundation of New Zealand Inc.
- Indonesian Hemophilia Society
Blood and factor safety groups
- Tainted Blood
- Birchgrove Group self-help group for people with hemophilia and HIV
- Living Stories
- Family Annual Meeting of Hemophiliacs in Ohio
Other organizations
Non-profit organizations
- La Kelley Communications - free books and other educational resources.
- Coalition for Hemophilia B
- Inalex Communications - education and support organization dedicated to meeting the needs of all those living with a bleeding disorder.
- Carol Kasper, M.D. - compilation of free scholarly articles.
- Comprehensive Bleeding Disorders Center - education, support groups, advocacy, and treatment for Illinois residents living with genetic bleeding disorders.
For profit organizations
- Hemophilia Village by Wyeth pharmaceuticals
- Haemophilia Life - A resource for patients, carers and healthcare professionals by Wyeth pharmaceuticals
- HemophiliaMoms.com a Resource for Hemophilia Families by CSL Behring
- Haemophiliacare.co.uk - A resource for patients and caregivers by Baxter pharmaceuticals
- Haemophilia the official journal of the World Federation of Hemophilia published by John Wiley & Sons.
- Comprehensive Health Education Services - CHES - Haemophilia Awareness - CHES inspires awareness and self-reliance for patients with chronic health conditions, their families, and their communities.
References
- ↑ List of National Hemophilia Sites World Federation of Hemophilia
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